December 12- day 92

We seem to be heading in the right direction finally. Jeff had a good day again. This morning when my parents were visiting he sat up for 45 minutes to 1 hour. He is now on a mechanical soft diet. This is a diet of very soft food. Pasta, mashed potatoes, casseroles, ground meats, and soft vegetables. He had a mashed potatoes and chicken casserole for lunch. His nurse said that he did not eat much but she feels like because he is receiving tube feedings that his belly is full and he is not hungry. She has suggested to the doctor that during the day the tube feeding be suspended and he might actually be hungry. When I was able to go after school to see him he sat up for 2 hours. He ate a little of the supper he ordered.
The rehab hospital has a bed for him but his pulmonologist still is not ready for him to go. Jeff's social worker at the hospital called me while I was driving to the hospital and said that Jeff's doctor wanted to discuss his concerns with me. He is supposed to call me in the morning so we can discuss his concerns. I told her if the doctor had concerns about sending him to rehab then I had concerns also. I am leaving the decision up to the doctor. The social worker told me that next week there may not be a bed for Jeff at the rehab hospital.